What do 3 Alopecian women talk about when they get together for lunch? Normal chit-chat, catching up, but inevitably the conversation turns to lack-of-hair issues. It’s not that any of us are obsessed with our dormant-to-dead hair follicles. One of my friends has had alopecia for 50 years and the other for 30 years. I’m the newbie in the group as I’m “celebrating” my 10th year.
We all have different stories about our hair loss, some funny, some sad. My two friends are never seen in public without their wigs, whereas I prefer scarves. When I initially lost my hair, I had Alopecia Universalis (total hair loss). Several years ago, my hair returned for about 1 1/2 years only to largely fall out again. I now have numerous, large bald spots, hair that is unnaturally dark and the texture of a horse’s mane. I have a major receding hair line, with holes in it. I hardly call this “hair”. To me it’s an annoyance and simply makes me feel very abnormal.
BUT - hair is in the eye of the bald beholder. I found my two bald friends enviously eying my fly-away sideburns protruding from my scarf. One commented, “If I could only have side burns, I would feel more normal.” I removed my scarf to show them the entire battlefield of hair that I persistently remove by electric razor. They oooh’d and ahhh’d over my horse tufts of hair like it was a Brooke Shield’s mane. They may love it, but I avoid looking at myself in the mirror. I cover my head 24 hours a day in a scarf and would be deeply embarrassed if my patchwork head were ever exposed. I would MUCH prefer to have a shiny bald head.
One more case of the “grass is always greener on the other side,” or in this case, “the hair is always better on the other head.”
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Hi Alison,
You are so right about the fact that individuals within the same community can react so differently to their condition. With Alopecia, there are so many degrees to which people actually lose their hair and then so many degrees of emotional struggle with the condition. Kayla Martell demonstrates the degree of acceptance we all wish for.
This is exactly why I love and depend upon encounters with diverse perspectives on any issue. It helps me see myself and my own challenges from different perspectives, often helping me to see my own issues in a more positive light, or if not, at least reminding me that others do not necessarily see what I see when I look in the mirror.
Thanks for reading and thanks for commenting!
January 25, 2011 - 6:51amSusan
This Comment
Thank you for this story-- it was helpful to understand this condition from an "outsider". I smiled when you wrote, "if only I could have side burns...", as I could just hear the women saying these words. It is helpful to be reminded that individuals within the same community experience a wide array of symptoms and emotions. I think sometimes we lump people into one condition, and think they all have the same experiences as well.
January 23, 2011 - 8:27amThis Comment