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Hi, Anon, and welcome to EmpowHer! Thank you so much for your question.

What have the last four years been like for you? How are your symptoms? Do you have much pain? I love reading that you are not defined by this; and I want to pat you on the back for being proactive and seeking more information.

Please take a look at our Sjogren's Syndrome encyclopedia page. It has lots of information on symptoms and treatment:

http://www.empowher.com/media/reference/sjogrens-syndrome#definition

Here's an answer I researched on this syndrome earlier, and it includes links to the foundation, some research studies and a forum:

http://www.empowher.com/community/ask/sjogrens-syndrome-i-need-your-help...

Here is another thread where a Sjogren's patient tells about her experience:

http://www.empowher.com/community/share/not-dry-eye-house-except-yours-s...

Where do you live? I would be happy to look and see if I can find any Sjogren's support groups in your area. Until then, you may be interested in sjogrensworld.org, an online support site where you can correspond with others, participate (or simply watch) live chats, or read the forum bulletin boards:

http://www.sjogrensworld.org/

This page does link to a listing of support groups. One link is for U.S. and Canada, the other is international:

http://www.sjogrens.org/home/get-connected/support-groups

And here's another online support group:

http://www.dailystrength.org/c/Sjogrens-Syndrome/support-group

Do these links help you any?

And if you would like me to see if I can find something close to you, where do you live?