Rett Syndrome

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Rett Syndrome Guide

Alison Beaver Guide

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Rett Syndrome Definition

Definition

Rett syndrome is a developmental nervous system disorder. It primarily affects girls. It is uncommon, but not rare. It occurs in one out of every 10,000-23,000 female births. Boys with the gene defect that causes this disorder are usually stillborn or die shortly after birth.

Rett syndrome can be classified into classic and atypical. This depends on the symptoms.

Many people with Rett syndrome live into adulthood. Most have severe disabilities. While many cannot talk or walk, they usually have a full range of feelings and often communicate through their eyes. People with Rett syndrome usually need daily care throughout their life.

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