Treatment
There is no cure for Rett syndrome. People with this condition need to be monitored for:
- Skeletal problems
- Heart problems
Treatment aims to control symptoms and includes:
Medication
- Anticonvulsants to control seizure activity
- Stool softeners or laxatives if constipated
- Drugs to help with breathing
- Drugs to ease agitation
- Histone deacetylase inhibitors—Scientists are investigating this group of medications to treat Rett syndrome.
Nutrition Support
- Small, frequent meals
- Supplements
- Tube feeding , if the patient is unable to consume enough food
- Fluids and high- fiber foods to help control constipation
Rehabilitation Therapies
- Occupational therapy—to help patients learn to perform daily activities, such as dressing and eating
- Physical therapy—to help patients improve coordination and movement (can sometimes prolong the ability to walk), braces and splints may be recommended
- Speech therapy aids—to build communication skills
- Social workers—to help a family cope with caring for a child with Rett syndrome
Techniques for Limiting Problem Behaviors
Keeping a diary of your child's behaviors and activities helps determine the cause of agitation. The following may help to prevent or control behavior problems:
- Warm baths
- Massage
- Soothing music
- Quiet environment
Improved
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