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Ankylosing Spondylitis is an autoimmune arthritis that affects as many as 2.4 million Americans. It is a chronic degenerative disease with no known cure. AS causes severe pain and fatigue, disabling those it affects.

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By kellychristaljohnston Leader June 3, 2011 - 4:30pm

Hi, my name is Kelly and I have AS. I am 32 years old married with two kiddos, a son who is 4 and a daughter who is 5. Living with AS is hard being a young wife and mother, but it helps to know there are other women out there just like me.

By Susan Cody HERWriter Guide June 29, 2013 - 3:24pm

Amber

Thanks for joining this group !

Have you found a workable regime for yourself yet? Please let us know!

I know you are a single mother of 3 - a lot for anyone let alone someone with a debilitating condition; I hope the children's father is very involved in their care and you have lots of support!

We hope to hear back from you!

Susan

June 29, 2013 - 3:24pm
By Amber Bennett June 4, 2013 - 2:37pm

Hi Everyone,
My name is Amber Bennett. I'm 28 and a single mother of three girls. Twins that are 5, and a three year old. Ankylosing Spodylitis has been a part of my life since I was a little girl. I grew up watching my dad Struggle with the disease. Unfortunately, He lost his battle due to complications at 38. I have had issues for a couple of years, not knowing these were A.S. symptoms. The past few months it seems like the disease has completely taken over my life. I haven't started any major medications yet. I'm in the process of determining a plan. It really scares me that I'm going to make (or be lead) to taking medications that lead to other major problems. I'm desperate for some pain management. I have done research and tried many things. Some days they help, but some days I can't seem to get any relief. I'm excited to talk to other women, and see what others have learned!

*Amber*

June 4, 2013 - 2:37pm
By Amber Bennett June 4, 2013 - 2:37pm

Hi Everyone,
My name is Amber Bennett. I'm 28 and a single mother of three girls. Twins that are 5, and a three year old. Ankylosing Spodylitis has been a part of my life since I was a little girl. I grew up watching my dad Struggle with the disease. Unfortunately, He lost his battle due to complications at 38. I have had issues for a couple of years, not knowing these were A.S. symptoms. The past few months it seems like the disease has completely taken over my life. I haven't started any major medications yet. I'm in the process of determining a plan. It really scares me that I'm going to make (or be lead) to taking medications that lead to other major problems. I'm desperate for some pain management. I have done research and tried many things. Some days they help, but some days I can't seem to get any relief. I'm excited to talk to other women, and see what others have learned!

*Amber*

June 4, 2013 - 2:37pm
By Susan Cody HERWriter Guide April 14, 2012 - 10:55am

jilljo,

Welcome, we're very glad you found us! No, this most certainly is not all in your head.

Please feel free to talk with us anytime, post a question or just hang out !

Best,

~Susan

April 14, 2012 - 10:55am
By Susan Cody HERWriter Guide April 14, 2012 - 10:46am

Hi again Denise!

Some places have weekend water workouts but feel free to ask them to consider starting them. I think classes would fill up pretty fast.

Good luck with the meds - I know it's really hard to find what works for you and the "experiementation" can be a real pain.

Talk to you soon!

Susan

April 14, 2012 - 10:46am
By jilljo April 13, 2012 - 5:27pm

Hi, just found your group, it sounds great, I have Ankylosing Spondylitis, too, just diagnosed a couple of months ago, but have lived with limitations and disability, since childhood - they did not diagnose told me - nothing wrong with you - all in your head! Back pain, everyone has that, so what. So have put up with pains, dozens of symptoms. Found this site what a find! Its not in my head- whoa what a find.

April 13, 2012 - 5:27pm
By Susan Cody HERWriter Guide November 13, 2011 - 10:50am

Hi nanfitz!

Thanks for joining; I hear Montana is a beautiful state.

If you want to share your story with us, I'm sure other readers will be able to give you the benefit of their wisdom.

We look forward to hearing more from you!

~Susan

November 13, 2011 - 10:50am
By nanfitz November 6, 2011 - 3:08pm

HI, I'm so excited that I have found this group as I live in rural Montana and groups are few and far between. Looking forward to a lot of great information and support.

November 6, 2011 - 3:08pm
By Violetsrblue October 3, 2011 - 3:08pm

Hi Susan,
Thanks for your response and suggestions. I will be starting an aquatics group soon. Unfortunately the only times available are during working hours but it's important so I'll find a way. I agree that it will help. For the past few weeks I've been in this terrible pain cycle that has made it nearly impossible to move but the doc put me on predisone a few days ago and the pain is easing up enough that I'm definitely more comfortable. He and I meet tomorrow and we'll talk about taking me off humira and trying enbrel. Don't really want to do an IV drug like Remicade but if it comes down to no life or remicade, then I'll acquiese. Today, I'm just happy to have some relief. Since I was diagnosed a year ago, it's been difficult to keep up with my work life as well as the things I'd like to do but I have hope. Thanks again Susan for writing and I look forward to hearing from you again.

Denise

October 3, 2011 - 3:08pm
By Susan Cody HERWriter Guide October 1, 2011 - 6:44am

Hi Denise

Thanks for finding us and joining this Group!

You are still very young at 52 and it's a shame to see your old activities like dancing and walking your dog become something of the past.

Have you tried an exercise like water aerobics? It's very low impact, a group activity so you are with others and really good for people with your kind of pain and limitations. Anything done in water is good.

There are also options like adaptive Yoga or Pilates that are specifically designed for those with limitations. You should check for these in your area.

Let me know what you think and I'll try to have a joke for your next time!
~Susan

October 1, 2011 - 6:44am