Ankylosing Spondylitis Join this Group

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By kellychristaljohnston June 3, 2011 - 4:30pm

Hi, my name is Kelly and I have AS. I am 32 years old married with two kiddos, a son who is 4 and a daughter who is 5. Living with AS is hard being a young wife and mother, but it helps to know there are other women out there just like me.

By Susan Cody HERWriter Guide April 1, 2015 - 6:13am

Hi Kelly - welcome! 

Are you going in for more testing? What are your symptoms? 

We hope to hear back from you! 

Susan

April 1, 2015 - 6:13am
By Amy Brokus March 29, 2015 - 6:02am

Hi! My name is Amy, I'm 30 years old, in a relationship of 10 years, and mother to an amazing 6 year old daughter. I have not had an official diagnosis yet, but found out that I am hla b-27 positive last week and my doctor suspects AS based on symptoms. Looking for information and support as I work through this.

March 29, 2015 - 6:02am
By TMH October 15, 2014 - 5:03pm

Hello everyone,

Newly diagnosed as of today. I am looking forward to hearing how everyone deals with this disease. Never in a million years did I think I would be diagnosed with something like this. I have to admit, I'm a little scared. So far I don't believe my spine has been affected. Maybe I'm one of the lucky ones to get a diagnoses after only one year of somewhat severe symptoms. I have had inflammation of the eye, hip, & shoulder and feel like I have a bad case of the flu most days. I ache all over, especially in the morning. I asked my doctor right away "Is there anything I can do holistically to improve my symptoms?" and he said no. Please tell me there is.....Gratefully ...Terri

October 15, 2014 - 5:03pm
By Susan Cody HERWriter Guide June 29, 2013 - 3:24pm

Amber

Thanks for joining this group !

Have you found a workable regime for yourself yet? Please let us know!

I know you are a single mother of 3 - a lot for anyone let alone someone with a debilitating condition; I hope the children's father is very involved in their care and you have lots of support!

We hope to hear back from you!

Susan

June 29, 2013 - 3:24pm
By Amber Bennett June 4, 2013 - 2:37pm

Hi Everyone,
My name is Amber Bennett. I'm 28 and a single mother of three girls. Twins that are 5, and a three year old. Ankylosing Spodylitis has been a part of my life since I was a little girl. I grew up watching my dad Struggle with the disease. Unfortunately, He lost his battle due to complications at 38. I have had issues for a couple of years, not knowing these were A.S. symptoms. The past few months it seems like the disease has completely taken over my life. I haven't started any major medications yet. I'm in the process of determining a plan. It really scares me that I'm going to make (or be lead) to taking medications that lead to other major problems. I'm desperate for some pain management. I have done research and tried many things. Some days they help, but some days I can't seem to get any relief. I'm excited to talk to other women, and see what others have learned!

*Amber*

June 4, 2013 - 2:37pm
By Amber Bennett June 4, 2013 - 2:37pm

Hi Everyone,
My name is Amber Bennett. I'm 28 and a single mother of three girls. Twins that are 5, and a three year old. Ankylosing Spodylitis has been a part of my life since I was a little girl. I grew up watching my dad Struggle with the disease. Unfortunately, He lost his battle due to complications at 38. I have had issues for a couple of years, not knowing these were A.S. symptoms. The past few months it seems like the disease has completely taken over my life. I haven't started any major medications yet. I'm in the process of determining a plan. It really scares me that I'm going to make (or be lead) to taking medications that lead to other major problems. I'm desperate for some pain management. I have done research and tried many things. Some days they help, but some days I can't seem to get any relief. I'm excited to talk to other women, and see what others have learned!

*Amber*

June 4, 2013 - 2:37pm
By Susan Cody HERWriter Guide April 14, 2012 - 10:55am

jilljo,

Welcome, we're very glad you found us! No, this most certainly is not all in your head.

Please feel free to talk with us anytime, post a question or just hang out !

Best,

~Susan

April 14, 2012 - 10:55am
By Susan Cody HERWriter Guide April 14, 2012 - 10:46am

Hi again Denise!

Some places have weekend water workouts but feel free to ask them to consider starting them. I think classes would fill up pretty fast.

Good luck with the meds - I know it's really hard to find what works for you and the "experiementation" can be a real pain.

Talk to you soon!

Susan

April 14, 2012 - 10:46am
By jilljo April 13, 2012 - 5:27pm

Hi, just found your group, it sounds great, I have Ankylosing Spondylitis, too, just diagnosed a couple of months ago, but have lived with limitations and disability, since childhood - they did not diagnose told me - nothing wrong with you - all in your head! Back pain, everyone has that, so what. So have put up with pains, dozens of symptoms. Found this site what a find! Its not in my head- whoa what a find.

April 13, 2012 - 5:27pm
By Susan Cody HERWriter Guide November 13, 2011 - 10:50am

Hi nanfitz!

Thanks for joining; I hear Montana is a beautiful state.

If you want to share your story with us, I'm sure other readers will be able to give you the benefit of their wisdom.

We look forward to hearing more from you!

~Susan

November 13, 2011 - 10:50am

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Description

Ankylosing Spondylitis is an autoimmune arthritis that affects as many as 2.4 million Americans. It is a chronic degenerative disease with no known cure. AS causes severe pain and fatigue, disabling those it affects.

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