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My daughter was diagnosed with NF1 when she was 6 months old.

By July 12, 2016 - 4:49pm

My daughter was diagnosed with NFI at 6 months of age. Her pediatrician promptly referred us to a genetic specialist when she counted multiple café ole birthmarks. It was later determined that it was passed to her from her father, who had no idea he had it.

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Support/resources/discussion regarding neurofibromatosis.


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