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I have endometriosys, since last 5 years. I want to have babies, can anybody help me to get through this disses? Thank you

By Anonymous July 6, 2010 - 1:21pm
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My name is Diana Radu (Romania), I am 28 years old and I am fighting with ENDOMETRIOSYS have ovarian ENDOMETRIOSYS since 2006; I have spent all my financial resources and health searching for a treatment.

At my first operation, 4 years ago, left ovary was almost completely extirpated. Now, I had the second operation (right ovary), and even so endometriosis is already back, after only few months. Can anybody explain me why (I took 3 months diphereline)?

Nobody knows exactly the causes or a treatment. The only think I can do and I really wish is to become pregnant. Unfortunately it is very difficult, taking into account that my both ovaries are operated. Not impossible, doctors say.

As I understood from doctors, Romanian and Hungarian, my only change is FERTILIZATION IN VITRO (FIV). This have to happen as soon s possible (because cyst is keep growing), otherwise I will have to operate again and then won’t be able to have babies again and, endometriosis will return.

Thank you

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Hi Diana,
Its a shame its so expensive to have IFV treatment, I hope you'll be able to full pregnant naturally. When I first found out I had endo the pain was so bad I couldn't stand up straight for four days. My uterus had adhered to my bowel and was lucky I got treatment when I did otherwise I may have had bowel obstruction as well. Apparently after a while endo becomes sticky which is when it can start causing big problems.

I'm sorry to hear you've been in so much pain, I hope it eases up for you soon.

The diet is from a book called "Recipes for the Endometriosis Diet" by Carolyn Levett. The following link will give you an idea of the books content and why certain foods aggravate the disease.


I've read on other blogs that wheat and diary seem to be triggers. I tend to agree with that as I stuck to the diet strictly for 3 months. It was amazing how quickly I felt the benefits, my first cycle on the diet was almost pain free. As the book suggests, you can slowly reintroduce foods that you were restricted from eating and determine for yourself if/what particular food triggers the pain. I am still off diary but started back on wheat and still have virtually no pain each cycle.

All the best

April 17, 2011 - 8:55am

Hi Diana,
I too have endo growing inside my right ovary. My gyno/obst told me that any eggs from that ovary would most likely not be viable. I was put on Zoladex for 6 months to try and stop the Endo growing (it was like going through menopause - hot flushes, mood swings, no periods etc...). It was only at the end of this treatment after having another laparoscopy that Endo was discovered in my right ovary. I was given a 6 month window to fall pregnant before it started to grow back. Fortunately I went on to have two successful pregnancies.

Since you have both ovaries affected I would continue with the IVF treatment and do as your doctor advises. See if there are other alternatives/procedures you can have done to increase your chances of falling pregnant. Your doctor should be able to advise you of this.

Its been almost 4 years since having my second child and my endo pain felt like it was coming back as bad as it was before I had my kids. I discovered an Endometirosis diet which I've been on for 4 months. I am virtually pain free now. The diet is meant to bring the Endo into remission/dormancy (you can never be cured from it). Its very restrictive but if it helps your Endo I'd give it a go.

Hope all the best for you

April 14, 2011 - 5:47pm
EmpowHER Guest
Anonymous (reply to Jo73)

Hey, Jo

I am glad to hear that women with endo can become pregnant...these I consider as miracles. For the moment, I can’t try another IFV (financial reasons - in Romania costs 5,000 euro, and I spent even my grandfathers economies on previous IFV , from last December) .
Pain is back, worst than ever. Sometimes, like last evening, I hardly can move or walk. This is it, I have to learn to live with pain (hope that something worst it is not going to happened).
You said something about a diet, can you send it to me?
Thanks and best wishes to you and your family.

April 16, 2011 - 1:22am

Hi Diana,
I am so sorry--I know it is frustrating beyond words. As your doctors said, endometriosis is one of those conditions that is difficult to treat and can keep "reappearing" after surgery or other treatments.

In vitro fertilization is absolutely a great alternative, but the hormones from pregnancy can also cause your endometriosis to become more severe. Many women who have endometriosis have become pregnant through in-vitro fertilization and have healthy babies; it depends on the type of health care, your individual situation and many other factors.

- How can we help you through this process?
- Do you have specific questions, or would you just like to talk?
- We can provide information, resources, as well as find women who have shared in these same experiences. Let us know what you need, and we can help!

July 6, 2010 - 2:33pm
EmpowHER Guest
Anonymous (reply to Alison Beaver)

Dear Alison

Thanks for your answer; 3 months ago I had FIV , without any results unfortunately. I do not know what else to do. There exactly one year since my last surgery and the endo cist is almost 7 cm ... if I do operation again, will loose any chance for pregnancy. How long do you believe I could keep trying get pregnant? How dangerous can that cist become? What is the worst it can happened?
I simply do not know what to do ...but I am so afraid of another surgery and what might this mean in the future.

Thank for your time and kind advice


April 1, 2011 - 6:07am
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