I was recently diagnosed with MG and the doctor called it ocular. Does that just mean early stages or will it stay localized with my eyes? I know it is a generally progressive disease. I just never heard it called ocular before. Thank you for any information you can share about the progression of MG and the general disease process.
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The past few weeks I have notice a marked increase in weakness in my legs and arms after usage. Like walking while carrying something. It is like I can't make them move anymore. They are so weak that the muscles twitch. I recover after I've rested awhile, depending on how severe the "attack" was. It may take a day or more or just a few hours. So far I have not had trouble swallowing or eating. Is this a progression of the MG or could it be a reaction to a statin medication I started taking a month ago? I also thought it might be an increase in the symptoms of fibromyalgia, which I also have. Can anyone comment?
November 26, 2011 - 6:04pmThis Comment
As an MG sufferer I can agree with Maryann, although in my case it started more ocular, then more generalised within a about two weeks. I am fortunate now that it has backed off, the ocular is almost non noticable, and the more generalised (breathing, swallowing, walking etc) is still there but in the background. I only notice it now if I do something stupid like overdoing a simple task that I used to do, putting up wall brackets with a screwdriver, I now know to use an electric one.
November 14, 2011 - 6:40amThis Comment
Thank you so much, Maryann. I truly appreciate your comments. They are very reassuring and informative. I have only been diagnosed for a little under a year, so I guess my future is still up in the air as to whether it will progress or not, but I feel very reassured. Thank you.
November 8, 2011 - 5:56amThis Comment
This Comment
Go to https://lists.asu.edu/cgi-bin/wa?A0=OCULAR and you will get plenty of responses to your question.
November 7, 2011 - 5:16pmThis Comment