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If anyone suffers from this, PLEASE contact me!! I've been having bladder and urinary pain for months. My urologist doesn't think I have Interstitial Cystitis, but I do have Trigonitis. I can't find any information on this. PLEASE HELP!!
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And how about the cauterisation of the opening of the bladder? Someone said it helped immediately and forever?
June 24, 2009 - 3:12pmI want to say that I am on my quantum medicine treatment now a month,I feel great,I I have that healthy feeling in my bladder that I forgot at all... It fills normaly,no discomfort at all...I can have sex again.
With nosodes they cured my system from stafilococ that I never new it was present.
But I will give up all the drinks but water for good. Its easy now to behave.
Try to cure with generator if its available >
This Comment
I have the same exact thing. Nothing ever grows in the culture, they don't know what organism it is, my dip test always shows white blood cells but no nitrites meaning it's not a bacteria like e-coli, On and off for 7 years now. Have seen seven Urologist. The cystoscopy always shows white pus on the trigone area but no IC pin points, can't hold urine, urgency, pressure and discomfort for hours after sex. The only thing that has helped was being on Batrim 1x a day, every day for the last 26 months and if I go off it comes back. Dr. Katz in Largo Florida is the only one who has looked with the cysto and put me on antibiotics continuously. She is a god send.
June 24, 2009 - 11:17amThis Comment
Thank you so much! I'll let you know how it goes :-)
May 31, 2009 - 7:56pmThis Comment
I was just diagnosed with Trigonitis. Have been suffering for months of UTI - like symptoms but everytime I went to the doctor was told I didn't have a UTI. Then last week I was hospitalized due to a kidney stone and when I told the urologist my symptoms he knew right away it was Trigonitis. I then went to his office and had a cytostocopy that confirmed it.
They are scheduling me to have a procedure to "burn" the ulcers. ???? Has anyone had this treatment? Has it worked? I am very nervous about this but at the same time want relief. I am sick of taking Azo everyday to relief my symptoms.
May 29, 2009 - 9:16pmThis Comment
Hi. Yes i have had this procedure a couple of months ago and am just now getting back to some sort of normality. I didnt think it would work as my symptoms didint ease straight away, it took a while although i still have bad days even bad weeks since i had it treated the same way you are going to. All i can say is everyone is different and that means we all respond and heal in our own special way. some people get instant relief, others dont. The procedure for me was fine. After i came out of anesthetic i felt like i had a bladder infection and it was quite uncomfortable to go to the tiolet for a couple of days. After that things started to settle down.But like i said we are all different. I am still having the occasional bad day/s. I have just moved into my new home as well so i think stress has played a major role in my slower recovery time.Since moving i have been very comfortable. Its amazing how your mind can effect your body. Hope all goes well for you. I would be interested in hearing how you get on with your recovery as well. Good luck.
May 30, 2009 - 4:50amThis Comment
yea. i'm going to see a urogynecologist soon. i also suffer from vulvodynia and cannot have sex. most of my pain is not in my bladder, it's in my urethra and vagina. any ideas on other pain management? i take amitriptyline and cymbalta.
May 20, 2009 - 8:29pmThis Comment
Yikes! It sounds like you have something else on top of the vulvodynia. I'm so sorry you're in such pain and I hope your doctor can help you find some relief and get you on a path to healing.
This information might help you:
AUDIO: Caroline Pukall, Ph.D, CPsych Explains the Current Treatments for Vulvodynia
Vulvodynia, empowHer Encyclopedia
May 21, 2009 - 5:04pmThis Comment
that's just great.
May 20, 2009 - 6:44pmThis Comment
Sorry we can't give you the definitive answer. After all, we're not doctors and can only provide what information we can find.
Have you consulted your own doctor?
And, you can also ask your questions directly to our panel of medical Experts.
May 20, 2009 - 8:03pmThis Comment
so there's nothing that helps? i haven't heard anyone say anything about treatment options.
May 20, 2009 - 1:47pmThis Comment