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Does anyone suffer from Trigonitis or inflammation of the bladder?

By October 30, 2008 - 3:01pm
 
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If anyone suffers from this, PLEASE contact me!! I've been having bladder and urinary pain for months. My urologist doesn't think I have Interstitial Cystitis, but I do have Trigonitis. I can't find any information on this. PLEASE HELP!!

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Anonymous (reply to leanne)

Well like I said I have finished all my treatments. One treatment a week for six weeks. I have my good days and my bad days. It is significantly better than it was, but the problem is definitely still there. Are you still doing the treatments? How many have you had? Like I said before... I was told that this is a miracle for some people! but for other's it doesn't help quite as much. I was hoping to be one of the "Miracle" cases but I think I may be back a square one.

K

September 25, 2009 - 7:53am
(reply to Anonymous)

Hi, sorry I haven't logged in for a while. Well in the past I had six treatments myself, and YES i felt soooo much better, not one hundred percent, about eighty. I went back to the doctor about six months afterwards, had another cystoscopy and he saw that there was a bit of the lesion left. I had 3 more therapies and then I was fine.. Now Im suffering, because of my own carelessness and I have a scheduled 10 therapies. five weekly and then one each month for five months. Or six and four. Im waiting for the medicine three weeks now and Im getting really frustrated, because it takes a while for your dosages to get to the hospital. They dont have a huge stock, as i understand that they cost two hundred and fifty EURO per time!!!! Anyways, Im in pain, Im taking pain killers and Im really frustrated and psychologically on the down side because of the pain. It's that burning in your bladder that is always there. It doesn't hurt when I pee, but usually at night when I go to bed I am reminded that I am not OK. Anyways, Im keeping my fingers crossed that the meds will arrive soon and I will be on my way to getting well. Don't worry, I think you need a few more treatments. You will be fine. Just a few more. Maybe get another cystoscopy to see what's going on inside. Unbelievable how such a small lesion can cause so much pain. Pain that really nobody who hasn't experienced this awful thing can understand. Good luck. I will keep posts on the progress when I eventually start.

October 18, 2009 - 1:37pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Oh I also wanted to post that taking AZO standard pills ( I believe that they have pyridium sp? in them) Help tremendously with my symptoms. My Urologist told me that these are safe to take. I just wanted to put that out there to maybe offer some relief to someone before they find the right treatment method.

September 25, 2009 - 7:56am

I have to deal with trigonitis myself. Good thing I got to the urologist as soon as I started feeling "weird". My "weird" is that I feel like there is something up my butt, like a scab, it's hard to explain. I insisted on a cystoscopy, and there it was...that disgusting ulcer, wound, leision, call it whatever. Monday I have an appointment for a pap, just to rule out any bacteria, and then off to therapy. Here in Europe, we use this medication which is given with a catheter once a week. It heals the wound. Sorry, but trigonitis for me is pain, and hell. I can't deal. I don't have urgency to urinate, nor does it hurt when I urinate, but when I walk or just do my everyday thing, the wound lets me know it's there. Unfortunately because I had this problem in the past, and because i started feeling normal and great, I never bothered going back for a couple repeat therapies, so it came back 2 years later, after my carelessness of not changing my wet bathingsuit, etc, etc. It came back but not as bad as the first time. The first time I wanted to die, I was also running around like a chicken without a head for a full year before I found this God sent urologist. It made me realize that most doctors have NO idea what they are talking about. I wish I had found him right away, it would have saved me a lot of pain, time, money, depression etc. Anyways, I will keep you all informed as to how it goes. All I know is that any pills, or meds I took did nothing. The only thing that worked for me was the therapy with the catheter. I have to find out what this medicine is called. It's the wonder medicine. It makes you feel like your bladder is covered with velvet. There is hope girls, you just have to find the right doc and the right medication. Antibiotics WONT do it. The will kill bacteria that may have caused the trigonitis, but they wont get rid of the lesion. I will post my news next week, and I will ask my doc about why docs dont recommend this therapy in the U.S.

I wish you girls all the best...and this site is really helpful, because you know you are not alone, and hope can be given from communicating our experience.

Talk to you all soon
L

September 2, 2009 - 11:48am
EmpowHER Guest
Anonymous (reply to leanne)

for what I know ARGENTUM , Ag , is SILVER.
and silver water is antibacterial substance, it can be used to flush your mouth,...and bladder..it kills bacteria. So I heard that is the latest trend in treating trigonitis.
But I see it as not enough eficiant... Simply -NOT ENOUGH
This is my third post, I am cured from Trigonitis now.
Without pills ,without antibiotics. Only once I went to see urologist, to get that diagnose. And never came back for hormones or any tablets from there.
And I am the only one so far, who spoke about trreatments that are different...from classic medicine.
No one else tried holistic or quantum medicine?
No one else tried frequency generator?
No one else tried biomedicine?
Well,this is the way to go.
I am very strict now with what I eat, and especially what I drink. And how I drink it..
Ask around for informotherapy, any biomedicine practice will be able to help with info...
I followed those instructions with delight..
Go find that peculiar book, from dr Hulda Clark.. -CURE FOR ALL - there you will be able to undestand what you need to know, only the basics of - how to think and behave...
I am cured now..
When you get tired of being treated the way you are now, you will be ready to go this way.
Your trigonitis is there because you did not take enough care of yourselfe enough, and add years ,too, and some bacteria or other pathogenes that live in your bladder and cant be beaten by drugs or discovered by urine analysis..and it applies to any other desease that exist.
Biomedical treatments gives the boost to your immune system so your body can fight the desease, and nosode filled with frequencies fight the patogenes in the system.
I wish you all good luck and to make yourselves informed like never before.

September 22, 2009 - 10:43am
EmpowHER Guest
Anonymous

I am going through my treatment for trigonitis for 3 months now and I feel Iam cured,my bladder feels like it felt so many years age when I was healthy. Everything is just great and I can have sex again without worry.
Only I gave up all the drinks except pure water. Never alcohol and never sparkling drinks... I use Bamboo coffie which is not really a coffie.
My treatment worked fully...
So there is a cure.
I wrote about it above,some 3 months earlier...
Informotherapy, freaquency generator,diet...
Just needed to be strict with what I was told by the doctor and some patience...
Look for someone in your city who is practicing quantum medicine,and you will cure
that trigonitis forever and maybee somenthing else along with it ,just like me.
What is the most important is the way you drink your filtered water:
Every half an hour a 1-2 dcl of water...to flush bacteria out of the body...

September 2, 2009 - 6:38am

I was also diagnosed with trigonitis by a urologist after a referral from my OB/GYN to rule out IC. I'd had a terrible flare up the night before and I was still burning when i went in for the cystoscopy and I wanted to kill the urologist afterwards! He gave me some Vicodin for the pain and that was it. I have never heard of many of the antibiotics that I'm seeing here and now I dont have insurance to go back to the doctor. Its been a miserable road. I remember that I hated to "go pee" when I was a child and I experieced painful or burning urination but I dont remember when it started and as a child I didnt know it wasnt supposed to feel like that. I didnt get infections that I knew of until my senior year of high school. I was on the swim team and excessive moisture from wearing my swimsuit a little too long probably contributed to the yeast infection but I had no symptoms. My Dr. found it during my yearly and one pill cleared it up. It was nearly four years later when things got really bad. I got a strong urgency to urinate but couldnt and the sensation that the fire of hell was rapidly tearing through my vagina and stomach. I even had some spotting. The strange thing is this came only 2 days after having a fine yearly check up and the doctor didnt find any infection when i went back in the next morning either. I went through about 3 different antibiotics. None of them worked. Months later...college health center found E-Coli and an abnormal pap....more antibiotics. Second pap was normal but the burning feeling still came and went. Sex contributed to the irritation and I would feel raw and chaffed afterwards. May not be worth noting, but my GYN first told me that I had HPV and after the colposcopy found that it was just a bacterial infection. I've also been diagnosed with Candidiasis. Its been about 4 years since the first flare up and I am still struggling. I take cystex and heavy doses of pain killers and sleeping pills. If you can't beat it...escape it...i guess. I dont know what else to do.

August 30, 2009 - 6:16pm
(reply to modelingrace)

I am so sorry you are going through all of this pain and agony, and are having to use heavy doses of pain killers and sleeping pills. Are these prescriptions being monitored closely by a doctor, as the combination could be very concerning.

Were you able to read the above comments from other women, in order to use some of their suggestions or doctor recommendations?

How is your trigonitis being treated? Do you have access to a specialist in this area, or are you still seeing the doctors at the student health center? (don't get me wrong---I used to work in a student health center at a university, and many are great---they just aren't specialists).

August 30, 2009 - 9:48pm
EmpowHER Guest
Anonymous

A herb called horsetail helps with this!!

August 8, 2009 - 1:16am
EmpowHER Guest
Anonymous

I have had Trigonitis - and i believe it is back again.

Here in Australia i guess things are different - but once diagnosed i went in for surgery - they cortorized (spell check) the trigone area, which was INCREDIBLY painful, and i wasnt able to have sex for 6 weeks... when i did, i was in agony.... but after a few weeks things improved, and ALL symptoms disappeared... for 3 years... now they are coming back!!

July 13, 2009 - 8:49pm
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