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Anyone use Neurological Relief Center for Fibro relief?

By September 11, 2009 - 7:53am
 
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My chiropractor is part of this group that advertises relief for Fibromyalgia. I have had the basic test done and had some immediate relief of headache and muscle pain. The test was like an accupressure kind-of-thing behind my jaw and at the base of my skull. The Dr. says it's not really accupressure. I haven't actually started treatment yet. There is a web site : stopfibro.net Thanks, Linda

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Anonymous

Jill

More false information from someone who demands answers to her questions, yet conveniently refuses to provide any answers of her own. Again, Jill believes that if you throw enough mud against a wall, some of it will stick.

There are so many inaccuracies in that post, I don't know where to begin, starting with the cost of the treatment. Ridiculous, and easily proven to be so. Just ask your local care provider.

September 16, 2010 - 11:49pm

I have recently caught up with the postings on my questions about this procedure. I appreciate the participation and am not surprised this process seems frustrating to others, it certainly has frustrated me. I do believe it is good to hear from other people on important health issues; thus, I participate in some of these discussions. Some of the threads of discussion reveal important facts, some of the threads reveal strong emotion. I find this post is creating some of both.

To anonymous, thank you for your time. As a health professional, it is good to hear from the non-patient side as to how you feel about the procedure, and the source of the training.

To Jill, thank you for being so forthcoming about your experiences, since most of the advocates for this procedure lean heavily on empirical data. I was wondering if you did the treatments that are done for first for free? I wasn't sure.

To all who are still reading and thinking about this procedure, I have a few additional notes. As to the Scientology bit, I was duped, and yes, that's what it felt like, into doing some "sessions" in Scientology. I try to keep an open mind about things, although I am a Christian at heart. So, the sessions were basically about digging into your past and revealing, under what seemed like mild hypnosis, critical moments in the past. I ordered a few items of reading material and the order mistakenly gave me lots of copies of each book. I tried to return the books for a refund and was flatly turned down for any refund. This, in of itself, is not common business practice, even on eBay. So, I stopped any association with Cybernetics, Scientology and the like. Rip me off once, shame on you; rip me off twice, heck you don't get a chance. So, if this sales pitch is Scientology -- I HAVE NOT GOTTEN SUCH A PITCH FROM THE SESSIONS I HAD.

As to this being a wonderful solution, better than drugs, I'm all for something that doesn't require medications. I hate the broad claims made by drug companies. Side-effects are only listed if the FDA has required same. I will not try Lyrica or anything that is not specifically for fibro. I've tried Neurontin in the past but took myself off the medication (with my doctor's knowledge) because the weight gain was too much. I struggle with diabetes and that will kill me faster than pain from Fibro. (I paraphrase a statement from a Neurologist--terrific doctor, too!)

So, in all, to date, I have heard that this works. OK, it DID work for me. However, I wouldn't recommend pursuing a treatment without getting the costs clarified. I think I will talk to the chiropractor about the costs and post the results. Then, at least, some of you will have better information. I won't be able to afford it, I can tell you that right now based on what I got from the office last time.

It doesn't concern me too much if something isn't covered by medical insurance. I can either afford it for the results, like acupuncture, or I just have to refuse it because I have limited income. Period.

I just get as angry as Jill when someone poo-poos my limited resources as an excuse not to get better. ANYONE who talks like that, has NEVER had pain like fibromyalgia gives and I dismiss their comments out-of-hand as being ignorant. Yes, I said ignorant.

Here's the other things I'm trying. First, I was taking Abilify. I got more fibro symptoms. I was on Neurontin, but I put on 20 pounds that exercise and diet would not reduce. I have been swimming and exercising more. However, if I even slightly overdue it, I hurt for a week. You fellow fibro sufferers know what I mean by that. Stretching helps somewhat. However, I have to really take it easy for awhile to recover. Oddly, I can't tell while I'm exercising if I've overdone it. I find out later. I think swimming has been the most helpful. However, it is swimming that has caused the "overdidit" pain. Acupuncture helps for acute pain in some areas but only lasts a few days. This treatment only lasted a few days. THAT gets expensive!!!!!

I am trying to stretch more. I noticed that my dogs and cats all stretch extensively every morning and after every nap. I'm trying that. I got a new mattress. Couldn't afford a sleep number bed or tempurpedic or latex. I suspect that sleep number type of bed would help. That's my next post, asking about mattress preferences and possible relief. See you there, Linda

September 11, 2010 - 6:38am
EmpowHER Guest
Anonymous

The reason I haven't responded yet is because this kind of communication leaves me feeling deflated and slightly negative. The reason I am now responding (for the last time) is because I don't want to leave this post with open ended questions.
While I feel that it is impossible to change your mind, and I have no interest or benefit in working towards that end, I do care about the other sick people reading this post at a later stage.

Dr. Whitcomb was found to be neglectful due to things such as inadequate physical examinations, inadequate note taking, excessive and unusual treatment frequencies, and making claims. In America, unless you are doling out drugs, it is illegal to say you "cure" anything. While I have my own feelings about the CA board of chiropractors, we can both agree on one thing: They NEVER found anything wrong or negative about his actual technique. People sometimes think that they throw enough mud against the wall, some of it will stick.

Dr. Singer is a well- known chiropractor and coach who has done much good for a profession I love. He is held in high regard by all our processional associations, and known all over the world. Since his religion has absolutely NO bearing on this technique, I find it irrelevant to discuss, and an intrusion of his personal privacy.

I am anonymous because I don't want to sign in here and be bombarded with e-mails. I did, however, helpfully, provide the name of my clinic, as well as the address.

Now, I have a few questions of my own:
1. Why do you stubbornly refuse to speak to people who received this treatment and ask them about their experience? I am providing you with all the help you need to reach them. Does it not suit your viewpoint?
2. Have you ever posted on any other sites about this specific topic?
3. Have you ever been tested yourself? How long were you in treatment yourself, to say with certainty that it doesn't work?
4. Why are you refusing to address the glaring problems (and failure to heal fibromyalgia) of very expensive drugs like Lyrica?

With this, I am signing off. There is no end to negativity. If you have this condition, please investigate the results for yourself. Any practitioner will be happy to put you in touch with people now living amazingly different lives all across America. Forget the negative Nancys or angry Jills, and keep looking for your own answers, always.

The body is amazing, and it can heal amazingly well, if given the chance.

September 9, 2010 - 1:41pm

I rest my case!

Jill

September 9, 2010 - 11:54am

Ms. Anonymous, (Why don't you use your name??)

2 questions:

1 Why did this Whitcomb lose his license for doing this work you talk about? Did you see his Television interview, he was ripped to shreds?.

2 Why all the Scientology stuff about David Singer?

You seem to be avoiding these issues.

Jill

September 7, 2010 - 10:48am

Ok Mr. Anonymous,

My acupuncturist showed me an ad he was given to use, MS, RA,Fibro, RSD, Parkinsons, Stroke, on and on. Of course marketing a product or service is important. According to my acupuncturist, the so called treatment was 10 minutes to learn and the marketing was 2 days. I also did some research today on your Dr. David Singer. Wikipedia is not the Britanica but I would advise anyone reading this to look Dr. David Singer, who is behind this, up on Wikipedia and you'll get an eyeful. Here is a quote:

The firm and its predecessor Singer Consulting, however, have also brought hundreds of new members into the Church of Scientology, triggering a nationwide controversy among chiropractors over concerns that it may be, largely or in part, a proselytizing front group for the church.[1] Since the 1980s, Singer has held seminars throughout the United States promoting Scientology founder L. Ron Hubbard's business methods, which revolve around management by statistics.

Lastly I suggest you look up a Dr. Paul Whitcomb and you'll get another eyeful. You can also find him in the Chiropractic Board of California where they tell why he lost his license. Who are we to believe.

As Carl Sagan said: Extraordinary claims require Extraordinary evidence.
So where is it??

Jill

September 6, 2010 - 7:25pm
EmpowHER Guest
Anonymous (reply to Angryjill)

Firstly, I am actually a female doctor, Jill. Secondly, I am not a Scientologist. (See what happens when you are SURE something is the way you see it?) Not that it matters. Scientology is recognized by the American government as a religion, not a cult. I guess because you deem it a cult, it makes it so? In any case, this technique has absolutely nothing to do with Scientology, so discussing it's merits or lack thereof is moot.

Like I said, you can go to my Facebook page and personally meet patients that suffered horribly from Fibromyalgia and are now living pain- free lives. (The Neurologic Relief Center). They are all very open to speak to people about their road to wellness. You can probably meet them on Facebook. We are not the enemy. How difficult is it to find a doctor who believes that you are really sick firstly, and secondly made it their personal mission to not only help your body to heal but for you to also get your life back? Every patient coming through my door sets a goal. It may be to go back to work, to be able to go for a hike again, or simply to be able to pick up their grandchild without being in terrible pain the next day. I do everything in my power to help them reach that goal.

When the meninges around the brain and spinal cord are constricted, it can cause a wide variety of symptoms or different conditions. We do not claim to heal these conditions, because that would not be legal. What I can tell you is that I have had personal success with a wide variety of conditions, including MS. This is the truth, and so I can say that with confidence. Fibro remains my favorite condition to work on, because it is so life- robbing for the people suffering from it.

Not every treatment is for every person, and every treatment does not help every patient. Please tell me which medical treatment has even a 30% success rate in reducing fibro symptoms without dangerous drugs. Tell me what that is. They must have incredible results, if being backed up by science predicts success. You did not address Lyrica and what it does to the body. Why is no one raising red flags about these drugs or the practice to simply bombard every fibro patient with countless medications?

Some of the brightest and most successful chiropractors in the country are using this technique. People whose reputations mean everything to them. If you can keep an open mind, you will be shocked at some of the testimonials our patients have. If this is not for you, that is fine. Not everything is for every one. I will like to say something I like to tell my patients: whether you think you can beat this or whether you think you can't, you are probably right.

In the time you have spent researching this technique and the doctors involved, and being "angry" about it, you could have been looking for fibro people online who DID get better in some way, and you could have explored positive things to do for your condition (assuming you suffer from fibromyalgia). Anger will not help you to get better. It does not do a body good.

September 7, 2010 - 7:03am
EmpowHER Guest
Anonymous

Jill,
I'm SORRY you are so upset about the whole thing, I understand that having Fibro is a very very hard thing to deal with. As with any major disease there are a litany of treatments available to choose from which can become very frustrating. I can tell you a few things about the NRCT as I am a certified practitioner as well as a friend of David Singers, and a Christian. David is as good a person as they come, and David's purpose is to help as many doctors help as many patients get well as possible so that this world will be a better place. To do this he understands he needs to help doctors learn how to spread the word of this amazing technique. I think you would agree that in order to do that a bit of marketing is in order? How would you feel if there was this amazing treatment for xyz condition and it was kept hidden under a rock so that only a few could benefit from it? That being said it is most often the case as I am aware of that persons interested in the treatment are able to be tested for little to no charge to see if they are even candidates for the actual treatment. I don't see any other cures/fixes/drugs/etc doing anything remotely close to that. I have seen patients of mine that I have struggled to do more than just hold things together attain a pain and disfunction free existence. Does it help everyone I test NO, do I accept everyone I test as a patient NO. If it doesn't work for you don't do it, if it does than you should absolutely run with it.

September 6, 2010 - 6:34pm

My acupuncturist went to a seminar, signed up for the program and went to a weekend training on this "miracle" technique. According to the workshop, it helps every neurological disease in the world. I next checked out a company called David Singer Enterprises who runs it. Take a look as that will tell you all you need. It's all about making as much money as possible. My acupuncturist wants his money back as the whole weekend was about marketing this new cure. You tell me Mr. Anonymous what I should think.
I've been sick for years, and have spent so much money and all you people want is to take more money, from those of us who are sick. This is the worst type of prostitution.
Scientology is not a religion, it is a cult. You are obvious a part of this cult. My acupuncturist told me about the table lined with Scientology books. Enough said.
This whole scam deserves to be reported to the Attorney General's office and maybe I will, and yes, I am angry.
Jill

September 6, 2010 - 9:57am

It is a scam, put forth by a chiropractor named Paul Whitcomb who lost his license and is now cashing in through a consulting company associated with David Singer, a Scientologist. Be very careful as I was almost duped into this by an acupuncturist in New Jersey!
Jill

September 6, 2010 - 7:51am
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