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Does anyone suffer from Trigonitis or inflammation of the bladder?

By October 30, 2008 - 3:01pm
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If anyone suffers from this, PLEASE contact me!! I've been having bladder and urinary pain for months. My urologist doesn't think I have Interstitial Cystitis, but I do have Trigonitis. I can't find any information on this. PLEASE HELP!!

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EmpowHER Guest

Is it okay to share a new Facebook forum here? Me and another women with Trigonitis have made a group on facebook to connect with others and share informations - this forum is great as well, and it doesn't have to be a contradiction. Will just be nice to stay in touch and share our struggles and learnings - since this illness doesn't seem to have a 100% sure cure. Let me know if it's okay with a link. Otherwise - we are basically the only forum on facebook for Trigonitis so come find us!

July 17, 2018 - 8:51pm

Hi everyone! So I was diagnosed through cystoscopy with Trigonitis. I am the initial stages of figuring out how to go about it, and know very little. I just wanted to give one trick that has helped me, before I even knew it was Trigonitis. Colloidal silver - its commonly used in animals but many also recognise it was an alternative antibiotic. Natural. I used to get relief almost instantaneously. Do research it. I havent done a lot of background on it, but here you go. I feel for all of you, and hope we can exchange our experiences - and hopefully one day figure out how to cure this.

July 16, 2018 - 5:35am
EmpowHER Guest

Hey everyone,
I'm writing here with an update. I have previously stated that I'm thinking about having Cystistat treatment, but my doctor informed me about an alternative treatment.There's a new similar drug to Cystistat in the market, it's call Vessilen. It's accessible in Europe and is cheaper than Cystistat. I have been on this Vessilen treatment and I can say that it has helped a bit, not a lot, but I definitely feel better. I have not yet finished my treatment.
This treatment is pretty much the same as Cystistat. You have Vessilen instilled in your bladder once a week for 8 weeks straight and then you do follow up treatments for 6 months - 1 instillation per month. Later on you see if you need to continue doing it or not. It's not a pleasant feeling when during the procedure, but it's not as bad as I have imagined it would be. It's almost pain free (unlike cystoscopy). After the treatment you are not allowed to pee for minimum one hour at least so your bladder is coated in Vessilen.
I hope this info helps someone out.

July 23, 2017 - 5:45am
EmpowHER Guest

Hi is there any update on trigonitis please? I'm 54 premenopausal and have had this diagnosed via cystoscopy . Now have burning pain all around pelvis and lower back . Thinking hormone related
Help anyone?

June 16, 2017 - 2:22pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I've just read that estrogen therapy is effective for post menopausal women, as you are of menopausal age and you'd be very near to menopause, I'd say you are spot on and should investigate hormone therapy with your Dr. ASAP!!

I've personally had some relief with doxycycline 100mg twice a day for 1 month, then 1 a day for one month with pessary tablets to treat any microbial imbalance, but I'm 29.

Can they can make us new bladders?!

July 25, 2017 - 8:09pm
EmpowHER Guest

Hello to all fellow trigonitis sufferers. I hope you all feel better than the last time you've posted here. I'm dealing with this horrible illness as well. My problems started in 2015 July, when I started having UTI's that eventually lead to cystitis and then it became a trigonitis. I have been diagnosed with it in June 2016, my urologist did a cystoscopy and saw a bit of redness there, that is not supposed to be there. She gave me antibiotincs (doxycilin) and suggested to do cystistat treatment. I refused doing it, since cystoscopy itself brought so much pain, I couldn't imagine dealing with familiar pain weekly during the treatments. My symptoms are constant urinating and stomach ache (in the lower belly). I've tried so many natural remedies, antibiotics, antidepressants, you name it... and nothing. And so many urologists, just like some of you say here do not deserve their doctor's name - they have no idea about this illness. It's heartrbreaking, since this illness stops you from having any kind of normal life.
Now I've recently had another cystoscopy (since I started feeling way worse) and my trigone are is even worse (altho after previous cystoscopy I had tried so many natural remedies, hoping it would go away). My bladder and blood tests are all clear (it's a very common case when having trigonitis). My doctor suggested cystistat once again or botox. I don't really understand how botox could help in trigonitis case, since it's being used usually used for overactive bladder syndrome. So I guess I'll have no choice but do the cystistat treatment. I may inform you on here how it goes, I have a lot of hope for it. If someone is having this treatment at the moment, please share how you are feeling.

Some things that helped me a bit:
Tea made from dry silene flowers (silene latifolia). You put dry flowers and just pour boiling water. Doesn't taste incredible, but it will make you feel better.
Parsley tea
Always pee before and after sex. (I had no idea about this before and had no problems)
Cymbalta x Amitrypletine antidepressants combo - helps with pain and makes you want to urinate less.


March 3, 2017 - 12:49pm
EmpowHER Guest
Anonymous (reply to Anonymous)


I have no idea if it would work on you but Colloidal silver helps me. Its a natural antibiotic.

July 16, 2018 - 5:08am
(reply to Anonymous)

Hi I have been been suffering with the same condition for 16 years now, seen numerous specialist.
I have had Botox injected into the vaginal area targeting certain tight pelvic floor muscle areas and yes it did work but only temporarily as Botox is not permanent.
I have flared up again and it just feels like I have chronic cystitis very debilitating.
Put a big stress on everyday living trying to work and stay strong with your family and partner.
I also get the bladder spasms that causes my trigonitis to flare when that happens and I have no control of that.
The only thing I find that gives me some relief is half a tablet of Bactrium at night which is an antibiotic, a low dose anti inflammatory tablet Celebrex helps and get vaginal pessaries of Valium made by a compound pharmacy, place one in the vagina at night, take low dose of gabapentin which help with neuralgic pain.
Sometimes your pelvic floor muscles are also making the problem worse, check you don't have hypertonic pelvic floor, that means very tight muscles., which I have as well.
I have tried everything and I am still suffering. As I said I have been ok for 18 months after the Botox but sex flares it up immediately.
I do constantly use the Valium and Bactria when it get really bad.
I also find that taking prelief which a tablet that neutralises the acidity in your bladder helps before any meal.
Definitely take them, if you can't get them take bicarbonate of soda.
I'm seeing the specialist again next week, another cystoscopy. Having a urethral dilation helps temporarily.
Wish you all the best. Very debilitating disease to have, wish there was a cure.

March 3, 2017 - 3:57pm
EmpowHER Guest
Anonymous (reply to audrey_audrey)

I too have had a diagnosis of Trigonitis 16, 1/2 years ago, trouble is I seen a private specialist, he said I had chronic Trigonitis and needed to have lazer surgery straight away costing $1.000.00 a day + . I’m on a disability pension I couldn’t afford that so I’ve been back and forth to hospitals, no cameras no biopsy, not like the private specialist did. They with out a camera say I have interstitial cystitis. I keep telling I don’t, how can you say I have this without a camera. I ve had infection of the urine but over the years of the gaps of no infection they just got smaller and smaller till I’ve been taking antibiotics daily. I feel I’ve become resistance to antibiotics and been misdiagnosed, hospitals will not take me seriously, I’m on a non urgent waiting list to see a urologist, I’m in so much pain. No we’re to go, I’ve tried so many things nothing works. I’ve even gone to emergency over and over, just given antibiotics and painkillers, now antibiotics is the only thing that takes half the pain away. But this week my doctor shouted at me, no more antibiotics no more painkillers. I bleed when I haven’t got these to take went in to emergency to the hospital with a pad of blood, they told me I wasn’t bleeding enough and sent me home . Anyone out there can help me. I feel Im going to dye before Im seen to all because Im public and on a disability pension.

December 16, 2017 - 7:16am
EmpowHER Guest

I have trigonitis but I am only 16 which is almost unheard of to have trigonitis this young. I have constant bladder infections that sometimes put me in hospital and I am in constant pain when I pee especially after sex. It I should a horrible condition and next infection I get means that I have to get the bacteria burnt and from past experience it's going to kill.

September 28, 2016 - 11:07pm
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