Does anyone suffer from Trigonitis or inflammation of the bladder?

Hello to all fellow trigonitis sufferers. I hope you all feel better than the last time you've posted here. I'm dealing with this horrible illness as well. My problems started in 2015 July, when I started having UTI's that eventually lead to cystitis and then it became a trigonitis. I have been diagnosed with it in June 2016, my urologist did a cystoscopy and saw a bit of redness there, that is not supposed to be there. She gave me antibiotincs (doxycilin) and suggested to do cystistat treatment. I refused doing it, since cystoscopy itself brought so much pain, I couldn't imagine dealing with familiar pain weekly during the treatments. My symptoms are constant urinating and stomach ache (in the lower belly). I've tried so many natural remedies, antibiotics, antidepressants, you name it... and nothing. And so many urologists, just like some of you say here do not deserve their doctor's name - they have no idea about this illness. It's heartrbreaking, since this illness stops you from having any kind of normal life.
Now I've recently had another cystoscopy (since I started feeling way worse) and my trigone are is even worse (altho after previous cystoscopy I had tried so many natural remedies, hoping it would go away). My bladder and blood tests are all clear (it's a very common case when having trigonitis). My doctor suggested cystistat once again or botox. I don't really understand how botox could help in trigonitis case, since it's being used usually used for overactive bladder syndrome. So I guess I'll have no choice but do the cystistat treatment. I may inform you on here how it goes, I have a lot of hope for it. If someone is having this treatment at the moment, please share how you are feeling.

Some things that helped me a bit:
Tea made from dry silene flowers (silene latifolia). You put dry flowers and just pour boiling water. Doesn't taste incredible, but it will make you feel better.
Parsley tea
Always pee before and after sex. (I had no idea about this before and had no problems)
Cymbalta x Amitrypletine antidepressants combo - helps with pain and makes you want to urinate less.

S.

I have trigonitis but I am only 16 which is almost unheard of to have trigonitis this young. I have constant bladder infections that sometimes put me in hospital and I am in constant pain when I pee especially after sex. It I should a horrible condition and next infection I get means that I have to get the bacteria burnt and from past experience it's going to kill.

My heart goes out to all fellow sufferers of this horrible affliction! I was diagnosed in July, 2015 and although I had symptoms on and off for several years, I didn't have my cystoscopy done until then. IC was ruled out at the same time but I do follow the IC diet because anything, and I mean ANYTHING remotely acidic, causes a major flare-up. For example, I avoid most citrus fruits, coffee, tea, alcohol, some meats and anything with high acidity. Although I have some discomfort daily, this diet helps keep the major flare-ups at bay. I am only 35 and this is by far one of the most depressing and debilitating things I have gone through in my life! It is so hard to live day to day, not knowing how you will feel and not having the simple luxury of eating and drinking like a normal person! Tell me how a normal functioning person is supposed to get through the workday without a cup of coffee? That is the hardest for me. Or not being able to enjoy a glass of wine to relax at night or on a weekend. I've tried it all: antibiotics, dilation on several occasions and food avoidance; however, there may be HOPE here and something to look forward to with these following sentences. After much research, my husband and I stumbled upon an article online about a study done in Texas on a group of women with Trigonitis. It is a procedure called FULGURATION. http://www.sciencedirect.com/science/article/pii/S1879522615004212
I was desperate to have anything done for a cure, so I presented this study to my Urologist and he said he was able to do the procedure for me. It was exactly 5 weeks today that I had this done. Since it takes up to 12 weeks to recover, I will be having my follow-up cystoscopy in early April to determine if it worked. Fingers crossed and to all of you who pray, please do! Maybe this is our answer!!! I have had some discomfort during this healing process but no more than usual, with only one flare-up but that was while I was shedding some of the scabbing in the bladder. It is too early to tell at this point if it worked, but I will keep you informed. Good luck to all and God bless!
If anyone needs more information, feel free to email me at [email protected]

Sorry, I accidentally posted that first post twice!

I have trigonitis. Am in nearly constant pain, not just when or after I pee. Been on antibiotics for 3 months. The only thing that seems to help are Azo cranberry pills. I also try to avoid pop, alcohol, and orgasms.