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If anyone suffers from this, PLEASE contact me!! I've been having bladder and urinary pain for months. My urologist doesn't think I have Interstitial Cystitis, but I do have Trigonitis. I can't find any information on this. PLEASE HELP!!
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Does ANYBODY have CONSTANT, NON-STOP stinging pain in the URETHRA?
I do not get actual bladder pain or cramping, it is simply excruciating, life-ruining Urethral pain, it feels like I have been stung by a bee inside my urethra.
HELP!
August 25, 2012 - 8:19pmThis Comment
Hi!
March 17, 2012 - 5:24amI had trigonitis 5 years ago, and i suffered a lot. It was really awful. I thought i wouldnt never get better. I didnt feel pain but my bladder was always very very sensitive and i had to go to the toilet all the time. I kept working and doing things at home, rising my children but it was a nightmare. It was very difficult to everyone at home because they could see i was suffering a lot.
Before i knew what was my real problem i had to wait 7 months. Docters gave me so many prescriptions but they didnt work. Seven months later i had a cystoscopic examination and the doctor said my problem was trigonitis. He told me the only was an operation.
I had it a few months later and the doctor cut off all those white things ( I could see them in the sreen and they were like grass but white) i had inside my bladder. After the operation I had hard times until i got better. It took more than an year, but i did get better.
My bladder sometimes gets sensitive when im anxious or worried, but just it. My life changed a lot since the operation.
I cried a lot and it was a nightmare, but i always believed i would get better. I am not a religious person but I never lost faith...I had my children and they helped me a lot. They needed me so i always tried to be strong.
I am Portuguese and I had the operation there. I am so so gratfull to Doctor Carlos Jesus.
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are you from Portugal or Brazil?
September 3, 2015 - 7:20pmThis Comment
Hi i was diagnosed with trigonitis in feb 2014 and after trying treatments with no success I had the same operation as you in may this year I'm suffering a lot but I feel I'm getting better slowly and as you I keep having faith I will get better. I'm Portuguese too i live in Spain and I had the operation here. Please if this message gets to you write me my email is pateles. 30 @gmail.com I would like to know how you kept going after all these years. Thanks.
August 4, 2015 - 11:17amThis Comment
Thank God I finally got my answer,I have Trigonitis also.Sometimes I have been in the bathroom 48 times a day.And I am so tired and exsausted that I could just lay thier and exsplode,but I can't I am taking care of my mom thats on Hospice care,has about one to three months to live,I am under a lot of stress ,due also because I'm constantly in the bathroom,it's depressing!to the point I don't know how much more I can take.I'm on 3 different meds.I have no Job since I have to be with my mom constantly,I have had this problem since childhood.It's costing my mom a lot of money.I have tried to get help through Medicaid Since I can't leave my mom alone and even if I got a Job I can't stay out of the bathroom for more then 30minutes.Could I get Goverment help or SSD.I am 51yrs.old What can I do ??I'm so sorry for all the people that have this horrible condition!!
February 15, 2012 - 2:49pmThis Comment
I have trigonitis diagnosed 8 years ago. These things can help:
April 14, 2015 - 10:38amFirst make sure you do not have an infection. If you do take a full course and then try
Dilatation
Drinking gallons of water
Keeping bowels open
BUT mainly diet: avoid concentrated fruit juice / tomato juice
Carbonated drinks
White wine and champagne
Yeast products especially bread
You need to do this for a good length of time for it to take effect
Medication I have had cystostat through a catheter which helped slightly
Also I take Amytriptilene 4 at night. This does make you sleepy at first but your body gets used to it and it numbs the discomfort. Put one in your mouth and you will see the effect it has.
Try not to get stressed as this makes things work. Good luck
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I have read elsewhere that it is considered a disability and there are statistics related to the condition IC which I believe would also pertain to Trig. which include that the pain and suffering is found equivalent to cancer patients. That being said I would apply for disability for yourself and see how that goes. Do try the baking soda tums trick posted here a while back too.... it works well for fast relief.
August 23, 2012 - 12:15amThis Comment
sorry misspelled epithelial and trigonitis :/
December 13, 2011 - 9:43amThis Comment
During all my research all the while suffering and in agony wih IC/Trigonitis...which I'm beginning to think IC is one and the same as Trogonitis...anyways...GAG is in the epthelial (sp?) lining of our tissues which I thought sounded very similar to Glucosamine Chondroitin which is for lining or cushioning the joints ect..well my gut feeling was right on....I came across this website and this product also containing aloe....I've ordered two bottles...please read the link and info :)
https://www.desertharvest.com/shop/index.php?crn=207&rn=398&action=show_detail
December 13, 2011 - 9:39amThis Comment
concerning the oil of oregano -watch out for constipation that will be produced for sure. It is the combination of things you do (take) to win, that are right just for HER, so you need to experiment to succeed.
Also see Healing Codes, its about emotions that produce problems, like -
Bladder Problems
December 8, 2011 - 4:59amFear to release emotions. Holding on to old ideas, clinging to the past.
And there is more...like parents having problems in the marriage, or divorce, sensing smtng wrong around..
but the bladder will remain the weak point for life, with ups and downs, and it is possible to keep it under control. To love your organs help, visualise it and the time when it was healthy..that helps a lot, it takes the fear away, meditation. Keep saying ; my bladder is fine and well and healthy..make no space for worrying thoughts. Antroposophy.
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