Pulmonary Fibrosis Diagnosis: What Was Your Reaction?

Nancy:
Actually the first time they said pulmonary fibrosis to me I said, “What’s that?”

I had no idea what it was or what it meant. He explained to me a little bit in pretty dire terms what it meant ending in the fact that within five years I would be in hospice care.

It was petrifying; it was life-changing – I will never forget that moment.

But then the next few months after I went to another doctor, in the meantime by the magic of the Internet I had done a lot of research, and it changed my mind about what the diagnosis meant and more of what I could do about it.

I felt more empowered, not to, I mean I know that’s the name of your place, but I felt empowered just by using the Internet to learn about what it meant and that it didn’t actually have to mean a death sentence within five years, which gave me a much better outlook on the whole thing.

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Tags:

• Idiopathic Pulmonary Fibrosis