Does anyone suffer from Trigonitis or inflammation of the bladder?

Well, my treatments for trigonitis have been argyrol. My urologist prescribed 10 weekly therapies, then one therapy per month for 10 months. Just so you know, argyrol takes some time to kick in. I felt better after every period. It's a slow process but it works. If you see that after the six treatments you still don't feel better, maybe you can (when you get insurance again) some more treatments. Besides the urologist who found the problem, (I can say he is one of the best doctors I have ever met, and I owe him my sanity), the doc who actually does the therapies is usually an intern. Well it turns out that this intern is doing his research on trigonitis!!! He wants to interview me for symptoms, what I feel etc. I know that the main culprit of trigonitis believe it or not is chlamydia. That's the first thing they look for on this side of the globe ( I am in Europe). You can read stuff about chlamydia and the one thing you will never find is that it causes urethritis (inflammation of the urethra) plus the trigonitis that accompanies it. So at this hospital, before any sort of therapy, you get a pap test, a vaginal secretion culture for any other bacteria,' a urine test, and if all is clear you are ready to go.Antibiotics DO NOT treat trigonitis. You can take bags and bags and see no difference. Argyrol is probably the only thing that helps. This doc told me about a new research with antibiotics (claripen), one every 2 days for 10 weeks. When I see him in a couple of weeks for our interview I will get all the information possible. Argyrol has 80% effectiveness from what I have learned. It actually hits the spot, since it's inserted into your bladder, but like I said it takes time. It's like having a wound. It takes some time to heal even after putting on creams or band daids or what not. My symptoms just so you know, don't have anything to do with urgency or pain while urinating, but it feels rather like I have sand paper lodged up my perinium. When sitting or lying down im fine, when walking around it feels like the sand paper is sanding me down. I don't know if anyone can relate. Now trigonitis is really annoying because that specific place has a lot of nerve endings so it triggers pain back front, and just around the area in general. It's more annoying uncomfortableness rather than actual pain. After the treatments I see that the sand paper is getting smaller and smaller and causing less and less annoyance. This is over a period of a couple of months though. Anyways, when I get all the information I need I will post it. I congratulate this young doctor, since we both agreed that many many women suffer from this and so many of them just don't know what is going on with their body. I am up for a cystoscopy next week as well just to see where the inflammation is at. It feels like it's smaller, but not gone. I don't understand why some docs believe that the trigone should have a cobblestone appearance. It shouldn't. It should be smooth, and clear. cobblestone appearance means inflammation in any organ. I think that docs who have no clue on the subject use this as an excuse. And believe me girls I have bumped into many docs who are absolutely clueless. There is hope. You will not feel like this forever. Life is too short to suffer. I have become so obsessed with this subject that Im even willing to sit in on seminars where trigonitis is concerned, and this is mainly to help all the women out there who are suffering from it. I will be back with more information once I have it. Good luck to you all, and sorry for the long email.

Hi Anon - Since a wide variety of terms are used to describe bladder conditions and symptoms it can be confusing. IC (interstitial cystitis) and trigonitis are different.

Here's what the Interstitial Cystitis Network says:
IC can be easily confused with many different bladder diseases, such as a UTI, because the symptoms of frequency, urgency and/or pain are common to most bladder conditions.
Trigonitis patients may experience similar symptoms of frequency, urgency and/or pain. Trigonitis is diagnosed when physicians discover that the trigone (a triangular portion of the bladder that contains the openings for both the ureters and the urethra) appears inflamed and/or has a "cobblestone like" appearance. Some urologists don't believe in trigonitis because they believe that the cobblestone appearance is normal to the trigone. Others believe that an inflammation of the trigone may have a direct role in urethral syndrome.

More information: http://www.ic-network.com/handbook/basics.html

Hi Clonte and welcome to EmpowHER! I'm glad you found us. I'm sorry you've never been able to talk with anyone else dealing with Trigonitis, and am sure there are many others who've had the same experience. You could be a valuable resource for others - in fact, you already have been through your comments. I hope you will provide more contributions down the road.
Take care, Pat