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I had MVD surgery for hemifacial spasm about 6 months ago. Instead of getting better, my symptoms have gotten worse.

By Anonymous November 10, 2010 - 4:37pm
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The spasms come ninety percent of the time now but before the surgery, they were much less frequent, mostly when under stress. Also, following the surgery, more of my face is involved. I was having spasms mainly around my eye but since the procedure, the whole side of my face is affected. I was wondering why this might be happening. I also hear a thunder like noise when the spasms occur. They are also worse when lying down. If anyone has any similar experience, information or suggestions, I will greatly appreciate it. Thank you.

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EmpowHER Guest

I had my second MVD on Nov. 11,2002 at UPMC (the first one was at U of P and it was unsuccessful,that one was performed on July 19,2002,3 1/2 months earlier.Approximately 5 years post-op certain triggers were resurrected for whatever reason.These included washing hair while showering,brushing teeth, flossing,(especially at the 6 month dental cleaning) sneezing,caffeine,stress,tired,fatigued,especially after a light nap.Thankfully,the symptoms were shorl lived and temporary,but everybody has a nervous system unique to them,so it's difficult to generalize about this condition,once it has been addressed by way of the MVD.My advice-monitor and chronicle your symptoms,consult with your neurosurgeon and get a second opinion.

October 8, 2015 - 7:30am
EmpowHER Guest

Hi, I just stumbled on this site looking for similar stories as mine. I have had the same result with mvd surgery and it's been about 5 months. Has there been any changes with you since your last post? Just curious. I don't want to go through this again.

November 23, 2012 - 7:25pm
EmpowHER Guest

Hi. I agree. You should talk to your Dr about this. I have just had this surgery for the same condition, about 2 months back. I ended up with facial palsyon the affected side. However, by God's Grace the palsy seems to be temporary and I am recovering from it slowly. The spasms have disappeared, so I guess I can safely assume that the surgery was a success, though I am left with hearing loss on the side that I was operated.

March 25, 2011 - 3:05am
HERWriter Guide

Anon - Have you followed up with your doctor about this? If not, you should. Microvascular decompression surgery relieves symptoms for about 80% of patients and you should be healing, not getting worse. The symptoms you've described aren't typical, and you need attention. Let us know what you learn. Pat

November 10, 2010 - 6:07pm
EmpowHER Guest
Anonymous (reply to Pat Elliott)

Hi Pat. Thanks for your advice; I will follow it.I appreciate your response.

November 14, 2010 - 5:02pm
HERWriter Guide (reply to Anonymous)

Let us know what you learn, and if you have more questions after your visit. It's one thing to wait while symptoms subside, which can take several months, but it's got to be more upsetting to have symptoms worsening. You might also want to think about joining an online patient support group to get more information and support. I hope you get the answers and help you need. Take care, Pat

November 15, 2010 - 5:16pm
EmpowHER Guest
Anonymous (reply to Pat Elliott)

There is an online group available at Yahoogroups.

November 15, 2010 - 6:25pm
EmpowHER Guest
Anonymous (reply to Pat Elliott)

I agree with Pat, you should notify your surgeon. It's also true that for many people, it takes a long time, a year or more, for spasms to diminish or disappear.

November 12, 2010 - 1:52pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I hope mine will disapear. Thanks for your information.

November 14, 2010 - 5:04pm
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