Marly Silverman of P.A.N.D.O.R.A. encourages sufferers of fibromyalgia (FM) and Chronic Fatigue Syndrome (ME/CFS) to thrive. P.A.N.D.O.R.A. stands for Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy. The name is quite a mouthful but then so is the challenge of living with FM and ME/CFS.
Marly's life started to change in 1997 after an anaphylactic reaction from a beesting. Then she contracted an infection that wouldn't go away. After she was in a car accident, she could not seem to regain her health.
Her experience with Chronic Fatigue Syndrome and fibromyalgia had begun.
"Perhaps one of the biggest obstacles for FM/ME/CFS patients is learning to cope with the startling contrast of their new day-to-day lives. Patients suffering from these illnesses are often overachievers used to leading busy, fulfilling lives - making their newfound disabling limitations more than a little distressing. 'What happens is Fibromyalgia and ME/CFS patients pretty much have to reinvent themselves,' Marly says. 'People need to find happiness and joy throughout their daily routine and the years ahead. I think that really makes a big difference.' ”