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Living with and possibly leaving a sick spouse - a heartfelt story from a reader looking for advice

By Expert HERWriter January 7, 2009 - 10:17pm
 
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A couple of days ago, a woman wrote to me in the "ASK Michelle" section and told me her heartfelt, honest, and I think heart-wrenching story about her ill husband, who has multiple sclerosis, and the very real difficulties about living with someone who has changed in so many ways over the years. Many of the changes have affected his personality and made him very difficult to live with at times. I wrote her back and told her how I could totally see where she was coming from in terms of her emotions, and that I understood what she was saying. But I also wanted to post her story here (see below), so others could see it and reply to her and give her more suggestions, support and a sense of hope and that she is not alone. Please, if anyone has anything they'd like to tell her, I would really appreciate it--I'm sending her this link so she can watch for more replies. For example, do you know of another woman who has gone through this, and/or do you know of any resources for her? Thank you everyone!

"I am a 37year old female, well educated and completely healthy. I married my husband 8 years ago, knowing that he has multiple sclerosis. He was a vibrant, fun, clever and interesting person. Over the past 8 years, he has physically deteriorated (developed seizures, incontinence, difficulty walking distances, had a pulmonary embolism and now suffers from depression (but who wouldn't)). He no longer works, he stays home and does some household chores, is obsessed with our finances (we are doing ok), is mean and angry, hardly talks to me, hasn't held me or made love to me in years and honestly I don't even think that he likes me. I really think that I could deal with the physical limitations, it's the emotional stuff that is wearing me down. I've been seeing a counselor who asks me "How much more are you willing to take?" and I just don't know anymore. I'm so lonely and feel so trapped. He refuses to see a counselor or psychiatrist. I feel like an awful person for even thinking of leaving him, but I'm so unhappy that I don't know what else to do. I guess my question is "what kind of woman leaves a sick spouse?"

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EmpowHER Guest
Anonymous (reply to Ellekat)

Yes. Thank you...This person doesn't seem to understand in the least what caregivers go through especially when the person they are caring for is not loving and caring to wards them. That is what this forum is about. No one here says they just want to dump someone because they are sick. I'm wondering who this person is? Is it some steeped in a judgmental world view where he/she thinks people should just tow a certain line with out even being think about whats happening? Or is this a grouchy person some wants to or has left and doesn't want to look at them self..I just wonder.

March 24, 2015 - 9:47am
(reply to Anonymous)

In response to the original post... You should not feel guilty for doing what you need to do to keep your mind, your heart, and your spirit healthy and alive. No one deserves to be belittled and mistreated nomatter what, especially by someone who you have sacrificed so much of yourself for. I truly hope that everything works out the way that it is meant to and that you can find peace and happiness in that, whatever it shall be.

March 24, 2015 - 9:42am
EmpowHER Guest
Anonymous

I am going through a rough time now to similar to many others on here. I am married 31 years today, I am 52 and my husband is 55. He is a diabetic and has been for years. He was also diagnosed with copd 7-8 years ago. He was and still is a heavy smoker and over weight. I am a social smoker (which isn't good either) and too am over weight. In 2011 he had an accident at work and tore his rotor cuff very badly had surgery and was going to be limited and in therapy for about 9 months. He went back to work after a couple weeks doing light duty in the office(he was a semi truck driver). About 2 months into light duty he had a pulmonary embolism, which damn near killed him. Needless to say he is no longer able to work based mainly on the copd. He is not on oxygen yet. He has severe neuropathy in his feet and I believe it is starting up his legs. He doesn't do a whole lot. He moans and groans all the time and complains about his pain. Now about 4 weeks ago somehow he hurt his back and has a pinched nerve and is in physical therapy. I feel like it never ends. He is getting disabilty and I work full time but its not enough. He doesn't talk about finances too much, well he doesn't talk too much unless it's about his ailments. We have 2 children, my son is 25 and is out of the home, but my daughter is almost 19 and I think she is pretty much done with her dad. They don't even speak and I blame him. He is either glued to the tv or playing texas holdem on his cell phone. He does help with my mom. She is 85 and we recently took her car from her so he takes her to dr. appts. and gets her groceries every week but other than that he doesn't do much. We have never had a great marriage and several times over the years during a fight I would say I want a divorce but he never took me seriously. I want one now very badly but neither of us can afford to live on our own. I haven't even told me but I am sure he knows I am not happy. I recently moved out of our bedroom but used his back issue as the excuse. We haven't had intercourse in so many years I can't even remember. I remember him telling me once that I was too fat to make it work. He is 6'1" and I have 5'1" and I would have to say back then we were equally over weight. That hurt! He has hurt me many times with words always referring to my weight. Yet know he has gained so much weight he can't even put his own socks on anymore and I have actually lost a few pounds (just a few really like 10) better than gaining! I have no one to talk to about this. My best friend is almost a functioning alcoholic and my only sister has health issues herself. It doesn't help us having best friends that like to drink alot. We too enjoy drinking but only once a week if that and we both know that's too much for us. But by the end of the week I am ready to get lost in a few drinks. Sad to say because I do love him I just don't like him a whole lot and am not in love with him but I feel like he won't be around for too many more years. I am sorry for going on and on but I am hoping this will help me to be patient.

March 17, 2015 - 8:58am
EmpowHER Guest
Anonymous (reply to Anonymous)

Decades of bad habits most often don't change even when faced with death. See what you can do to improve your own health...Find friends that support this online or in the local community center health and wellness classes. Look in to a swimming or walking buddy. Also Seek emotional counseling at the local senior center, diabetes support group or care givers group.

Change your self then stand up for your self. But he may not change one bit so you need to plan for his care where it is not all on you...but where u get to decide how much to give...You can be kind AND very honest..but be for strong YOURSELF...and kids.

March 18, 2015 - 9:18pm
EmpowHER Guest
Anonymous

Dump the bastard. So what if it destroyes him. You will soon be free to find somthing else. And if the law comes looking for you for criminal abandonment, lie and tell them he hit you. Then divorce him and take away his dissability money. Buy yourself something gold. Hit the bars. Let him rot. Its all about you.

March 12, 2015 - 2:05am
EmpowHER Guest
Anonymous (reply to Anonymous)

I think or at least hope this person is being sarcastic or satirical...so we see the other side.

Leaving because of abuse is one thing...just doing or getting for your self is another. I don't the people coming here to vent are that way. Most have tried as hard as they can to helpful but are exhausted spent and at wits end...Not a good place to be. Alanon might be though. At least a caregivers support group. We are quite surprised to see that we can and should how WE deal with things...Sue Sita

March 23, 2015 - 10:32pm
EmpowHER Guest
Anonymous

Lady,

I hope you are alone, abandon, and scared some day soon so you will know what a bad person you are for leaving your sick husband. You deserve to suffer the same faite you are leaving him in. What, the rules don't apply to you? You can destroy him when he needs you most and not pay for your dispicable act ?

March 12, 2015 - 1:57am
EmpowHER Guest
Anonymous

I guess you can justify abandoning your sick spouse. The hard fact is they are better off without a cruel spouse that only wants the "for better" part.

March 12, 2015 - 1:49am

I have endured 15 yrs of verbal and emotional abuse from my husband -- he has driven away my daughters (from previous marriage --they are adults now) with his cruel words. He's had numerous health issues (pneumonia, blood clots, heart irregularities). He had a stroke 5 yrs ago and I reached the end of my tolerance for the pain of life with him. He is the total victim -- it's always about him, his ailments, money woes -- since he had the stroke he went on disability and can't work. I pay all the bills -- mortgage, daycare for our 10- year-old son, buy food and cook it after 9-10 hrs at work. There were days I was so physically and emotionally exhausted after working all day, and the minute I'd walk into the house he'd ask what I was going to cook for dinner. He never talks to me about anything except himself and his problems. Never asked how I am doing or seems to care. He hides his disability $ from me and expects me to pay his way. I just found out he has saved $2000 so he can buy a car for himself-- this while I was rolling pennies so I could get gas to go to work. He rages at me if I don't give him $, threatens to divorce me and take son away, then cries and seems totally unstrung. It is horrible.
I feel sorry for him yet recognize the red flag of codependency at the same time. He lives separate from me in quarters above garage with a separate entrance. I do not let him enter the house where I reside with my son, although I know he comes in when I am at work.
I KNOW that his me-me-me attitude will eventually kill me -- definitely spiritually and quite possibly physically, so removing myself and son from his toxicity is the only answer. It is easier if I don't have to interact with him.

March 11, 2015 - 9:14pm
EmpowHER Guest
Anonymous (reply to LifeIsForLiving)

Well, that you are "not alone" doesn't help
Much in the way of a supporting comment. But you are not a
despicable person unless you are abusing him. As quickly as my treatment of him made me feel that way about myself., i got back down to prayer and trying to become as healthy a caretaker as possible and make plans to save my own life and do the best thing for us both while I am still able. It takes a while and I'm making progress slowly since I began the process of having him placed in a full time nursing facility where he can make something better of his days too . He is doing better and so am I. God is merciful and I am grateful for his gifts and for what we have left- some cooperation and a more harmonic regard for one another . It would be nice if we could talk further ... This is a long comversation. A counselor is within reach if you want some relief. Prayers for you too. Love uourself enough to hang on and do for yourself ASAP with out taking to your sickbed.
I've dealt with this situation since about 2007-08.
There is so much and so many conversation s to consider. Having a life is one of them

March 14, 2015 - 12:44am
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