Facebook Pixel
Q: 

Living with and possibly leaving a sick spouse - a heartfelt story from a reader looking for advice

By Expert HERWriter January 7, 2009 - 10:17pm
 
Rate This

A couple of days ago, a woman wrote to me in the "ASK Michelle" section and told me her heartfelt, honest, and I think heart-wrenching story about her ill husband, who has multiple sclerosis, and the very real difficulties about living with someone who has changed in so many ways over the years. Many of the changes have affected his personality and made him very difficult to live with at times. I wrote her back and told her how I could totally see where she was coming from in terms of her emotions, and that I understood what she was saying. But I also wanted to post her story here (see below), so others could see it and reply to her and give her more suggestions, support and a sense of hope and that she is not alone. Please, if anyone has anything they'd like to tell her, I would really appreciate it--I'm sending her this link so she can watch for more replies. For example, do you know of another woman who has gone through this, and/or do you know of any resources for her? Thank you everyone!

"I am a 37year old female, well educated and completely healthy. I married my husband 8 years ago, knowing that he has multiple sclerosis. He was a vibrant, fun, clever and interesting person. Over the past 8 years, he has physically deteriorated (developed seizures, incontinence, difficulty walking distances, had a pulmonary embolism and now suffers from depression (but who wouldn't)). He no longer works, he stays home and does some household chores, is obsessed with our finances (we are doing ok), is mean and angry, hardly talks to me, hasn't held me or made love to me in years and honestly I don't even think that he likes me. I really think that I could deal with the physical limitations, it's the emotional stuff that is wearing me down. I've been seeing a counselor who asks me "How much more are you willing to take?" and I just don't know anymore. I'm so lonely and feel so trapped. He refuses to see a counselor or psychiatrist. I feel like an awful person for even thinking of leaving him, but I'm so unhappy that I don't know what else to do. I guess my question is "what kind of woman leaves a sick spouse?"

Add a Comment550 Comments

EmpowHER Guest
Anonymous

My wife is leaving me after 5 years together. I developed a severe nerve problem and other autoimmune problems. I love and adore her and she still loves me. Being that she is still young and my life looks bleak I don't begrudge her leaving, I just wish her happiness.

I will have to find my way or die, but I recognize this is my challenge and I don't want it to destroy her as well. Honestly many times I think it has been harder on her than me. She was not in pain but stood by and watched me suffer for years. I have been blessed and think no less of her even of it pains me to think of life without her.
If your life and goals no longer align then do what is best for both of you.
I wish you the best.

April 8, 2015 - 11:04pm
EmpowHER Guest
Anonymous

I stayed with my wife during her 6 year battle with cancer until the day she died. I didn't see the fine print in my marriage agreement that said I could leave at a time like that. I will never have to look back and regret having not done everything I could have. For some of us it's that simple.

April 8, 2015 - 5:34am
EmpowHER Guest
Anonymous (reply to Anonymous)

It us night always test simple. Does terminal illness allow for the person to be verbally and physically abusive?

I think not. Why should I stay to ve abused?

September 7, 2015 - 6:46pm
EmpowHER Guest
Anonymous

I had struggled with a similar situation with my ex-wife. We were married for 16 years. Four years into the marriage, she suffered an injury to her back and started treatment for chronic back pain. Half way through our marriage, I noticed her deterioration and she became increasingly self-destructive. I held on as long as I could, caring for her and being faithful to my vows. "For better or worse, in sickness and in health" kept me hanging on for a very long time. Unbeknownst to me, I could not see how destructive the relationship became for me or our two children. I found myself obsessing over her self-destructive behaviors and neglecting my own needs to take care of myself and my children. I lost sight of going to the gym, my hobbies, my friends, and other things that made me happy. I was afraid to leave her alone. I began taking on all responsibilities around our home. I began to feel guilty that I wasn't doing enough. Perhaps, if I would try harder it would help her be happy and I would feel loved. The downward spiral occurred slowly over many years. It was subtle, progressive, and was affecting all relationships in my immediate and extended family/friends, our finances, and my children's academics. I didn't notice how bad it had become because I was always putting out the latest fire. I was unable to see the forest through the trees.

In this experience, I have learned that I had to rebuild my confidence in myself to make the appropriate decision for my situation. I did this by working on my relationship with myself. By relearning boundaries, recognizing and no longer enabling destructive behavior, and sticking to ultimatums that I bestowed.

I learned that for those of us surviving situations like this, no one can tell you what is the right thing to do in your situation. Only you can determine that. I was unable to make that determination for years. In my mind, a logical voice wanted something better but a self-deprecating voice in my head kept me locked-in to fight the good fight: rescuing, sacrificing, and being the martyr. I was then able to see that my needs and happiness were important and fulfilling them was not selfish, it was necessary.

I know many people in similar situations that have chosen to stay and many that have chosen to leave. In either case, support groups and counseling are critical components to maintaining the areas of ourselves that help us rise above the anxiety, depression, worry, and self-sacrifice. I have learned that the ones that are most healthy in these situations are strong in mind, body, and spirit. The tools I used to help myself was writing in my journal, regular physical activity, reduction of alcohol consumption, self-help books, getting out for group activities with my kids and other health adults, opening a business, counseling, group therapy, taking classes, staying away from other intimate relationships, and trying new healthy things that made me happy.

As long as your decision is your own and you have YOUR best interest in mind, whatever you chose to do IS the right decision. In my case, I found that once I could see the forest through the trees, the circumstances made make that decision for me.

Good luck. Stay strong. You are a survivor!

April 5, 2015 - 10:46am
EmpowHER Guest
Anonymous

Get out. Get out now. You can sacrifice your life and be controlled by all this nonsense about how you "can't feel this way" - extraordinary! - and how "you're a bad person" or you can ease away and find a life.

The longer you stay the worse you will feel. The longer you stay, the more ill your partner - who has done nothing wrong and is not at fault - will become, and the more drowned in his illness you will become.

My husband has a chronic illness which means that we do nothing, all day long, year after year. I'm the sole earner. He wants to do nothing - though he is physically capable - but if I manage to prise him from the bed I have to pay for everything which means that unless I go somewhere on my own we don't go far.

He's a good, loving man. And I have a life too, one that is small and miserable.

Get out now. Hater's are going to hate, and they're going to tell you that you're a piece of shit because they would like nothing more than to reclaim their life too.

Get as much support as you can for your partner in place. And then go.

April 4, 2015 - 9:48am
EmpowHER Guest
Anonymous (reply to Anonymous)

I had major marital problems with my husband before he got aggressive cancer. He is now not working and waiting for a stem cell transplant. His sickness has made him even more aggressive and demanding. He wants nothing to do with his daughter and he is even more self-centered than he was before. I feel a moral obligation to stay with him until he recovers from his procedure. This could take up to a year. I was not happy before he got sick and things have only gotten worse. There is a chance his cancer might return and this is what keeps me doubting my decision to leave him in a year. He has no one else and if this happened he would be alone. I am still a young woman. Regardless of my husbands sickness, I would be contemplating divorce as we bring out the worse in each other.

November 12, 2015 - 8:38pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I could have written your post. My husband never wants to do anything but stay shut up in his room.

July 27, 2015 - 10:38am
EmpowHER Guest
Anonymous

Here is my life. After living together comfortably for 40 years the wife got sick. No more housework, no more sex, lots of running errands. Lots of work. Period. Remember our vows, for better or for worse. Worse has come and we don't bail out boys. Are you bailing out for sex, intimacy, you dam loser, don't bail. Remember your honey, how she loved you all these years. She needs us guys. Don't bull s--t your buddies and feel sorry for your sorry ass. It's time to man up. Practice safe sex boys. That's why the good Lord gave you two hands. Be faithful and stick with your baby till the end. Right to the bitter end. That's keeping the marriage vow till death do us part. If you bail, everyone will cuss you as a miserable two timing assh---e. Don't do it. Keep the girl. She loves you till the end. End of story. Dig it?

April 2, 2015 - 12:03am
EmpowHER Guest
Anonymous

well reading this article I could just not help to want to cry I tune of multiple sclerosis my husband and I have been married 36 years. I got multiple sclerosis in 2009.... I was diagnosed at a very late age thank goodness. I have lost the ability to drive im incontinent I had to leave my job why my husband does everything...... I can see him wearing down. I feel like I've become a burden on everyone. we get along and we love each other he says he's committed to me but I can't help to think he could have a better life without me. he's healthy and is very active and I am NOT......... but if you ever left me I think I probably stop eating and die. but I would feel happy that he would have a new life

March 23, 2015 - 4:16am
EmpowHER Guest
Anonymous (reply to Anonymous)

Please, you cannot feel this way. You have been together with your husband for so long - you are part of one another. The door was always open for him to leave but he chose to stay. He obviously loves you and you must be very good to him as well. At the end of the day, all we have is ourselves and we are lucky if we have our loved ones. You have both. Obviously, he could have had a different life but he chose you. We all have choices every single day. In your husbands case, it probably was never a choice. Some people stay and some go as you've read in this thread, but each circumstance is different. Your is unique as well. This is a tough thread to read.. period. Life is tough and we all at one time or another have to make tough decisions. You have made the best of your chronic illness, I can tell. You continue to be the woman you've been for him. He chose you. You chose him. If he walked tomorrow, life would go on for you. Not saying he ever would, but you have had more strength and courage with your own illness for so long - You woud survive. You have survived this for SO long. Don't put bad things out into the universe. Be grateful for what you have in your husband and continue to show your appreciation as he continues to show his appreciation for you. Wishing your tears be taken away and that you always count your blessings. Warmest regards, MKR

March 25, 2015 - 7:19am
Image CAPTCHA
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy
Add a Comment

All user-generated information on this site is the opinion of its author only and is not a substitute for medical advice or treatment for any medical conditions. Members and guests are responsible for their own posts and the potential consequences of those posts detailed in our Terms of Service.